Sunday, May 2, 2010

What is fair!

So, as we are working to help get Jenessa the appropriate accomodations, I keep thinking... What is fair in the world of disabilities? Is it fair that my daughter crawled at 10 months and other mom's that I talked to told me their childrent crawled at 14 to 15 months. But yet we are asking for more pt visits and ot visits? Is it fair that my daughter is ahead of the curve, but yet we get to request a speech therapist, just to be on the safe side? Yes she is a little behind in her speech, but nothing like she could be. I just keep thinking about how I am always asked at school to make it fair, is fair really fair? I don't think so, and yes it is fair for us to ask for all of these things for Jenessa because it is called early intervention for a reason... to help us help Jenessa before she hits those walls of hardship. Every parent wants what is best for their child and in the world of disabilities you have to fight hard for that... If you think about it, is it fair for a parent of a child with a disability, that has to deal with the hardships and frustrations that come along with whatever the disability is, to have to fight so hard to get the interventions that the law requires be offered?? So, I guess the real question is, God, did you chose me as Jenessa's mommy because even though I am emotional, I have the fight and the drive to make sure she is given every opportunity to succeed, fair or not?? Well, personally I feel that he did and I am proud of that!! My sister made a statement to me when I had a pregnant women moment she told me, "Wow, your daughter is going to be very lucky to have such a protective mom." Looking back on those words I guess the fight that I have in me will be put to better us now, than it was that day!!
So just a thought, how can we tell our kids that they deserve to be treated fair, when fair isn't really fair?

Realizations!

So, we went to a 1st birthday party yesterday and had a great time!! It was so much fun for Jenessa, she just loved it. Her favorite thing to do in large groups of kids or even small groups of kids, is to stare at the other kids. Now, Jenessa plays, but she takes time out of playing and watch... which I think helps her because she gets to see what other kids at her age are doing. Though I came home from the party a little deflated about Jenessa's success! She is doing wonderful, but she just seems a little behind in her gross motor skills. She isn't really even close to walking yet and every other child at the party was walking and I know, I know she will do it on her own time and don't wish for that yet... blah blah blah. I am sorry, but my daughter should be getting ready to walk! She has been crawling for long enough! I know I can't say that, but it is frustrating and I am saying this down Syndrome or not!
It is just hard to keep in mind that my daughter will probably take a little longer at everything that she does! It doesn't mean I have to like it!! I just hope that she gets more opprotunities to be around more children soon! It helps her out so much!!